New hope for Maroteaux-Lamy sufferers : “‘Generally, patients present in maybe their five to 10 years of age with skeletal problems, stiff joints and an ability to not grow,’ Professor Hopwood said.”
Once again, a condition which we know little about and which children and their families have to try and deal with. I believe it’s important we know what is out there because it helps to get us onto things quickly but it is also important we can lend a useful hand and ear in terms of supporting people who are dealing with these conditions so that they can adapt more quickly to what they need to know and do. The family of the little boy who is improving have been down a difficult path. He can now go without his wheel chair most of the time. That’s marvellous and full credit to the people who put in so much time and thought trying to help us with our conditions.