Posted in Uncategorized

New hope for Maroteaux-Lamy sufferers

New hope for Maroteaux-Lamy sufferers : “‘Generally, patients present in maybe their five to 10 years of age with skeletal problems, stiff joints and an ability to not grow,’ Professor Hopwood said.”

Once again, a condition which we know little about and which children and their families have to try and deal with. I believe it’s important we know what is out there because it helps to get us onto things quickly but it is also important we can lend a useful hand and ear in terms of supporting people who are dealing with these conditions so that they can adapt more quickly to what they need to know and do. The family of the little boy who is improving have been down a difficult path. He can now go without his wheel chair most of the time. That’s marvellous and full credit to the people who put in so much time and thought trying to help us with our conditions.

Advertisements

Author:

Adelaide based professional. Lived here most of my life. I have been a teacher of French, English and German since 1974 and value the capacity of the classroom to write on the lives of others.

2 thoughts on “New hope for Maroteaux-Lamy sufferers

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s